Some References


###Latania Sweeney about aggregating health data

It’s become clear that these protections fall short of what is needed
to provide protection, especially because health data is often
generated outside of the contexts where these acts apply, and because
sensitive medical conditions can be inferred from non-medical data, like consumer habits.

According to research by Latanya Sweeney, anonymized medical records
can be re-identified by triangulating patient information with other
data, newspaper events describing patient names and incidents that
resulted in a particular medical injury.

She also discovered that “87% (216 million of 248 million) of the
population in the United States had reported characteristics that likely
made them unique based only on 5 digit ZIP, gender, date of birth.”
which means that their anonymized medical records can be matched with
other databases to re-identify them.

In such a context it is worth thinking twice before aggregating
public heath data, because under the apparent utility and research
necessity, hidden agendas can easily nest .

Therefore Latania Sweeney directly asks: Given the diversity of data
that can be useful in a health and medical context, is the construct of
“health data” helpful? If so, for what purposes and how should this
concept be constructed?

What are the appropriate avenues for addressing potential risks to
individuals in non-medical contexts stemming from the availability of
their health data?

###Antoinette Rouvroy calls for “recalcitrance”

I have been trying to encompass the scope of the current trend in
self quantification that translates through an important rise of new
mobile sensing gears, heavy corporate communication, and DIY self
organised movement, as it slips quickly towards the idea of a possible
e-health raising many questions around identity privacy and the public

I feel that this self quantification movement needs to be firstly
addressed as an online social trend from a critical feminist approach.
It is indeed a new representational form of bodies, that tends to the
idea of an individualized and normalized persona reached through the use
of intrusive technologies, how do they relate to our previous
digibodies (Flanagan 2003)?

I understand this use of sensors as a form of body mapping strongly
binded to a social structure enforced by corporate and technological
powers that quickly accelerate its implementation as a playful and I
will make mine the apparatus of Antoinette Rouvroy when she calls for
“recalcitrance” Antoinette Rouvroy: ” les systèmes de contrôle de la
gouvernance libérale” “banalité sécuritaire” “qu’à condition de disposer
de quantités massives de données (à caractère personnel ou non)
relatives aux individus et de pouvoir appliquer sur ces quantités
massives de données des algorithmes de calcul statistique qui permettent
d’établir «automatiquement », des corrélations significatives entre ces
données recueillies dans des contextes hétérogènes les uns aux autres,
il devient possible de TOUT prédire” “En appeler à la récalcitrance,
c’est, ici, rappeler l’irréductibilité des personnes aux réseaux de
données digitalisées à travers lesquels le pouvoir (quel qu’il soit,
public, ou privé)

From experimental playful stages to real life data collection

I thought you might like the irony of the timeline, from experiential
situationist through to actual real life social experimentation by data
Same issue happens with body data that has started as a
playful endeavor a gaming environment at the city scale, and that now
finds new effectiveness through web 2.0 social network.


Very interesting article from a member of the canaries group about the different time as differnet aesthetics, sick time, healthy time, crip time etc…

voici la page des Canaries un groupe de soutient new yorkais de femmes artistes ayant des maladies autoimmunes

ce serait bien d’organiser quelque chose de similaire à Bruxelles?


Its quite interesting to see how the implication of women in computer science took a sharp and sudden turn down right in 1984

Many people attribute this to the first home computers, and the following advertisement campaigns that were male oriented, promoting gaming for boys, so was the cinema industry: (wargames for example). I also find this a possible explanation.

However it is very interesting to see that the very famous 1984 super bowl ad for Mac

Presented a bright young women running to break the 1984 screen watched by a crowd of grey men, this add was only shown once during the super-bowl and then taken down because the investors argued that since the mac was not yet ready it was to early to make some publicity.
One can easily wonder if this argument didn’t hide other concerns (maybe the representation of surveillance of uniform thinking or the women itself or all of that together…)


Quoted from previously cited Wikipedia article: Revisiting the commercial in Harper’s Magazine thirty years after it aired, Rebecca Solnit suggested that “1984” did not so much herald a new era of liberation as a new era of oppression. She wrote, “I want to yell at the liberatory young woman with her sledgehammer, ‘Don’t do it!’ Apple is not different. That industry is going to give rise to innumerable forms of triviality and misogyny, to the concentration of wealth and the dispersal of mental concentration. To suicidal, underpaid Chinese factory workers whose reality must be like that of the shuffling workers in the commercial. If you think a crowd of people staring at one screen is bad, wait until you have created a world in which billions of people stare at their own screens even while walking, driving, eating in the company of friends—all of them eternally elsewhere.”


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